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Volume: On. Subtitles: Not Available Yet.
2002-ish

Micah is trying to talk, and he definitely has something to say about everything. We just… can’t understand most of it yet. I’ve caught pieces here and there — “I remember,” “Where’s Mom,” “I have…,” and “I love you too.” He knows our names, and he knows my kids’ names, which I think is one of the biggest signs his brain is still in there somewhere.

We still don’t know what shape his vocal cords are in or how long it’ll take before he can speak clearly. Even yes/no is a struggle. He wants to explain things in full sentences, because that’s who he is, but his body isn’t cooperating.

Medically, he’s not out of danger. Yes, we’re relieved the tube is gone, but his blood pressure keeps bottoming out, and his nutrition is a mess — food intake, weight loss, phosphorus, potassium, magnesium, all of it. They eased off dialysis a bit to see what his system can handle, but with a liver that’s basically collecting unemployment checks, that’s a challenge. He’ll probably be on a 12-hour dialysis run tomorrow.

The encephalopathy is still very obvious. He’s not fully present, and he’s still recovering from being intubated for 16 days. His brain is worn out. His whole body is worn out. So no, he’s not “okay,” but he is fighting, and we’re taking this day by day.

Keep praying, sending whatever good vibes or intentions you believe in. His body needs every bit of support it can get right now.

-Hannah


Ps.

So many people have reached out, supported us, asked questions, visited, advocated, answered calls, sent gifts, donated, and just shown up in a hundred tiny ways. We see every stitch of effort. If I tried to list everyone who has stood with Micah — whether right beside him or from across the map — it would be endless. I wrote separately about my mom because she’s been in the trenches in a way no one else can be, but please know this: our focus is on Micah. That’s it. That’s the whole priority. No one else’s feelings, processing, or emotional needs matter right now except his. Everything else can wait. But truly, thank you, most sincerely, to those of you who have been so selfless in your thoughts and donations of gifts, money, or time. However big or small, they are seen and felt.